Welcome to the Huntington Disease (HD) Biobank

This valuable resource is made possible by the generosity of the HD community- where patients, families, and researchers, partner together to find solutions for HD.

The Huntington Disease Biobank at the UBC Centre for Molecular Medicine and Therapeutics

The Huntington Disease (HD) Biobank, at the UBC Centre for Molecular Medicine and Therapeutics (CMMT), is one of the largest HD biobanks in the world. Since the 1980s, patients and their families have generously gifted human samples to contribute to critical discoveries in the field of HD. During this time, a significant proportion of the scientific publications from UBC HD Labs have relied on experiments which make use of patient samples such as blood, DNA, brain, and other tissues.

The gift of human biological specimens, along with medical and family history details, are an invaluable resource for researchers worldwide. The HD Biobank is a proud custodian of these samples and clinical data from the HD community. With the permission of our donors, we collect, store, study, and share the samples and data with a community of collaborators who are working tirelessly to understand and treat HD.

As research findings lead to new questions, the collection and storage of these crucial samples is needed now more than ever. Expanding the HD Biobank by collecting high quality samples and data from diverse groups of patients, with a formal system to share them, will propel HD research for now and into the future. The search for donors, new collaborations, and new lines of investigation, continues with our belief that the careful study of the genetic, biochemical, molecular, and pathological features of the disease will ultimately lead to new strategies for diagnostics and treatments of HD. We are indeed a partnership bound together in a common goal – the development of approaches to lessen the burden of HD on families.

For more information about sample donation, please visit the “Patients and Families” page

For researchers wanting to collaborate with the HD Biobank please visit the “Researchers” page

Join our mailing list to get updates on the biobank and other HD news, please email hd.biobank@ubc.ca

The HD Biobank is funded by individuals in the HD community. Please donate to our operating costs so we can continue to be an essential resource for HD research.

Our Partners

Partner Links: CMMT, CHD, UBC, BCCHRI, HSC

The HD Biobank acknowledges with gratitude and respect that we operate on the traditional, ancestral and unceded territories of the xʷməθkʷəy̓əm (Musqueam), Sḵwx̱wú7mesh (Squamish), and Səl̓ílwətaɬ (Tsleil-Waututh) Nations.