Steps for a Successful Donation

How to Participate in the HD Biobank

The donation process is simple. Contact us anytime if you have questions.

Learn more about biobanking by browsing our website. Talk to your family and friends about it: maybe they want to donate with you.

Review, sign, and send us the consent form that applies to your situation. Consents can be sent via email or post.

Consent form for individuals with HD and family members to donate blood

Consent form for a family member who is interested in blood donation but unable to legally give consent.

Consent form for anyone at any time to make their future brain donation wishes known; and for family members of anyone nearing the end of life.

Once consent is received, we will ask you to provide demographic information, family history, and relevant medical records via a questionnaire and/or by signing a records release form.

Our team will pre-arrange everything for sample donation and shipping. We have financial support to cover all costs of the donation procedure including collection, shipping, and storage.

Regarding brain donations, please discuss your biobanking wishes with your next-of-kin and healthcare providers. To be useful for research, the donation needs to occur as soon as possible after death (ideally within 12 hours). Arrangements will be made in the days/weeks leading up to death with additional consent forms signed by your next-of-kin. We will prepare everything in advance to ensure the process goes smoothly without delay to funeral plans and with little burden on your loved ones.

Donation Overview

The HD Biobank acknowledges with gratitude and respect that we operate on the traditional, ancestral and unceded territories of the xʷməθkʷəy̓əm (Musqueam), Sḵwx̱wú7mesh (Squamish), and Səl̓ílwətaɬ (Tsleil-Waututh) Nations.